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Books & Magazines - for Adults

The Parent’s Guide to Children’s Congenital Heart Defects: What They Are, How to Treat Them, How to Cope with Them by Gerri Freid Kramer, Shari Maurer & Sylvester Stallone
Easy-to-follow question-and-answer format for parents with a child with CHD.

The Heart of a Mother by Anna Marie Jaworski & Judy Norwood
A collection of heart warming stories of children with CHD.

Hypoplastic Left Heart Syndrome: A Handbook for Parents by Anna Marie Jaworski
Written by a mother of a child with HLHS to elevate the frustrations of parents. Includes information on support groups and what to expect from physicians and other healthcare providers.

Kara Mia: The Story of Sudden Loss and Slow Recovery in a Teenager with Long QT Syndrome by Maryann Anglim & Walter Allan
Provides a unique prospective on a teenagers cardiac arrest, diagnosis of Long QT Syndrome and living with its aftermath.

Matty’s Heart: A Child and Parent’s Guide to Open Heart Surgery by Jean Clabough
Experiences from families and children of their experience with living with a heart disease.

Newborn Intensive Care: What Every Parent Needs to Know by American Academy of Pediatrics
To assist parents with preparing for their child’s NICU stay.

Early Passage: A Journal for Parents and Preemies by Priscilla Hernandez-Hacker & Carolyn Ringo
Designed to help parents cope with the emotional turmoil of the various stages.

Your Child in the Hospital: A Practical Guide for Parents by Nancy Keene & Rachel Prentice
A practical book of tips and wisdom from veteran parents that will help make any hospital stay easier.

A Night Without Stars by James Howe & Leslie H. Morrill
A fiction book about a teenager as she is about to undergo open heart surgery

A Whisper of Springtime – Jason’s Heart Transplant Miracle by Tedi Tuttle Wixon
A stay-at-home mom tells the journey of her son receiving a heart transplant

The Reluctant Warrior – A Journey Through My Baby’s Heart Transplant by Mary Chan
A mother chronicles her baby’s fight to survive after being diagnosed with a severe deformity in her heart.