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Congenital Heart Defects (CHD)

Congenital Heart Information Network
Information and resources for families

Canadian Adult Congenital Heart Network
Information on managing Congenital Heart Defects/Diseases

Canadian Congenital Heart Alliance

Heart & Soul: Your Guide to Living with Congenital Heart Disease
This book covers topics Congenital Heart Defects, Coping with Your Child’s Diagnosis, Visiting the Hospital, Navigating the Health Care System, Coping with Stressful Times, Growing up with a CHD, Just for Teens – Taking Charge, Caring for a Child with CHD, If Your Child Needs Surgery, and Preparing for an Emergency. Click here for a free, full electronic version of this book.

Congestive Heart Failure Brochure
Created by the Nursing Coordinators, this brochure provides an overview of CHF. (created: October 2014)

Long QT Syndrome
Created by BC Children’s Hospital (published: January 2013)

Supraventricular Tachycardia (SVT) Created by BC Children’s Hospital (updated: June 2006)

Wolff-Parkinson-White (WPW) Syndrome Created by BC Children’s Hospital (updated: August 2009)

The Patient Guide to Heart, Lung, and Esophageal Surgery
Available in both English and Spanish, this website is easily viewable on computers, tablets, and smartphones. All information has been reviewed by STS members and is divided into sections on adult heart disease, pediatric and congenital heart disease, lung, esophageal, and other chest diseases, heart and lung transplantation, and before, during, and after surgery.

*Knowing But Not Knowing
Finding out about your baby’s heart problem before your baby is born.