Need to talk to someone? Call us at (403) 910-3219 or email us to connect.

Need to talk to someone? 

Call us at (403) 910-3219 or email us to connect.

Living With CHD

Living with CHD
Living with CHD

On this page, we’ve gathered resources to help you understand the impacts so you can successfully support your child throughout their entire life journey.

WCCHN Resources

Decoding Clinical Talk
Practical advice and recommended vocabulary for talking to your child about medical experiences.

Trusted Online Resources

The Canadian Congenital Heart Alliance (CCHA)
The CCHA is a national organization that supports Canadians living with Congenital Heart Defects. Their website contains a vast collection of resources about CHD for parents and families.

Heart & Soul
Produced by the Children’s Heart Network of BC, in collaboration with BC Children’s Hospital, this extensive resource covers topics related to Congenital Heart Defects including coping with your child’s diagnosis, visiting the hospital, navigating the healthcare system, and more.

Pediatric and Congenital Heart Disease 

The Society of Thoracic Surgeons (STS) is an organization representing more than 7,600 surgeons, researchers, and allied health care professionals worldwide who are dedicated to ensuring the best possible outcomes for surgeries of the heart and lungs. WCCHN and our CV Surgeons have been longtime participants of the STS and their National Congenital Heart Surgery Database. This website was created by STS to provide patients and families with information about the different types of pediatric CHD and the possible treatment options.

Books and Publications

When Your World Stops: Finding Hope In Your Child’s Medical Journey
A book written by a WCCHN heart parent that includes short, experience-filled stories that cover hospital rounds, postpartum depression, roles of medical teams, updating friends and family and so much more. You will find tips on self-care or meditation that can help keep you grounded. 

Tell Your Story Through Photography
This book is a collaboration between three heart warriors, inspired by one Western Canadian family’s experience of CHD. It provides information on how you can narrate your journey, and heal, through photography.

Share This Page

Copy URL

Can’t find what you’re looking for?

You don’t have to search for information alone.